Trinity Angel Rose

Documenting The Life Of A Little Angel And Her Family

Tuesday, November 21, 2006

Time Goes By Fast

I can't believe that it has been 4 weeks already.

4 weeks ago today at 2:05 pm est Trinity Angel Rose was born.

Tony, the kids and I spent the past weekend at Johns Hopkins. We all had a really good time. We were able to spend our nights at the The Children's House . The kids loved it there. They have a couple Big, Big screen TVS, a huge play room and all 3 video game systems with lots of games.

When I went to visit Trinity on Friday evening, I found that her ng-tube had been removed. Trinity has been feeding from a special bottle, called a Pigeon. The nipple is a bit larger and the top side of the nipple is harder so that it can help her suck with the cleft palate. She is taking all of her feedings with the bottle. This is such good news. Learning how to feed Trinity makes me feel like a 1st time mom again. After breast feeding Morganna for so long, I had forgotten what a bottle was like.

On Sunday, each of the kids got to spend about 20 minutes with Trinity. This was the first time they had been able to see and touch her since she was born. MacKenzie was very emotional, and got to hold and feed Trinity. Cavin was a bit more apprehensive, and I think scared he would hurt her. Morganna was overwhelmed with the NICU, but warmed up quickly when Trinity got the hiccups and Morganna said she sounded like a mouse. I am so thankful that Johns Hopkins allows siblings to visit.

Tony and I were able to meet with Dr. Levey from the Carter Center on Sunday as well. It was nice to be able to meet with a doctor that seems to have a bit more knowledge about what is going on with Trinity.

Tony, Morganna and I are leaving tonight to spend the rest of the week at Johns Hopkins. I am hoping, and it all looks good, that Trinity may be released later this week. Two things need to be accomplished. I need to learn how to insert a ng-tube into Trinity incase she decides to stop eating and the insurance company needs to finish the order for a T-pump. The T-pump will help some in the temperature issue.

Mom will be meeting us in Baltimore on Thursday to spend Thanksgiving Day with us. The Children's House will be having a Thanksgiving Dinner for the families, so we won't be missing out on the holiday. :)

I am hoping Thanksgiving day is the day Trinity will be released.....but it is hard to say. I really don't know if I want to go home without her again. She is doing so well. Her life is still a big question mark, but the hospital really has nothing else they can do for her.

And can you believe it - a great week the whole family had, and I forgot my camera.

This back and forth from the hospital is starting to wear on me.

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